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Inflammatory Bowel Disease

IBD consists of two main conditions – Ulcerative colitis and Crohn’s disease – grouped together because of their similar symptoms.

These are chronic diseases of the intestinal tract, experienced by as many as 4 million people worldwide.

The L&D has an IBD Clinical Nurse Specialist – Sister Tracey Price RGN BA (hons) Dip.N

3 further IBD nursesSue Nanton, Frank Castro, Linda Samuel-Tuck

And an IBD Research Nurse – Kabiru Kasamu

Research

Gastroenterology Research is co-ordinated by Dr. Matt W. Johnson and (Dawa) Kasamu Kabiru

Presently the following research studies are active:

  • BOSS – Barretts Oesophagus Surveillance
  • CHOPIN – Barretts Genetics
  • PROFILE – Step Up Vs Top Down Treatment Study
  • BioResource – IBD Genetic Predictive Risk Factors
  • iCARE – International IBD Pathway Assessment
  • NIMO – Iron Deficiency in IBD
  • Go Colitis – Golimumab Trial
  • PANTS – AntiTNF trough and antibodies
  • PRED4 – IBD Drug Side Effects

If patients are interested they can contact us on 01582 718215

Services provided

  • Telephone helpline and Email helpline, 01582 718368. This is a voicemail system, please leave your name, hospital number or date of birth and a contact number so that the nurses can call you back or email ibd@ldh.nhs.uk
  • We have individual web portals for IBD patients. This can give patients increased access to the IBD Team. Supported by Patients Know Best – their helpline numbers are 0800 088 5827 or 01223 790708
  • We have access to the National IBD Registry. The IBD Registry is a national project to collect information about Inflamatory Bowel Disease (IBD) from across the UK for the first time.
  • Patient and family support and teaching patients and carers about IBD.
  • New patient counselling.
  • Teaching how to self-manage IBD and organise self-management plans.
  • Immunosuppressant blood monitoring for patients on thiopurine or methotrexate
  • DEXA scan monitoring.
  • Organising IBD patient education evenings.
  • Organising the IBD patient focus group.
  • Teaching about IBD to nurses, junior doctors and GPs
  • Paediatric Tranition Clinic held jointly with paediatric consultants and nurses for 14-19 year olds
  • Organising home care for self-injecting treatments

Symptoms of IBD
The most common symptoms of IBD include, but are not limited to:

  • Abdominal pain
  • Weight loss
  • Fever
  • Rectal bleeding
  • Skin and eye irritations
  • Diarrhoea (not related to travel or infection)

Follow these links for our leaflets on Inflammatory Bowel Disease:

Inflammatory Bowel Disease
IBD 5-ASA Drugs Information Sheet
IBD Steroid Information

Useful Links
Crohns and Colitis UK
Crohn’s in Childhood Research Association (CIRCA)
IBD Standards
Crohn’s and Colitis Foundation of America (CCFA) – the American Support group for patients with IBD
European Federation of Crohn’s and Ulcerative Colitis Associations (EFCCA)